Support Groups
Area Huntington Disease Support Groups
***********Toll Free HELPLINE: 1-888-264-HDSA***************
If it is your first time attending a support group, please contact the support group facilitator to let him or her know that you will be attending the group. The facilitator will give you information about the group and what you can expect at the meeting. Thank you!
Alaska
Alaska Shield
Marti Bradley, 907-258-5665, 907-222-5264
Additional Information: This group meets on the 3rd Wednesday of each month. Please call for directions.Idaho
ERIN DOLA
BOISE, ID
PH 208.381.7339
Wright Congregational United Church of Christ
4821 W. Franklin Road, Boise, ID
2nd Wednesday of each month at 6:30pm to 9:30 pm
Montana
Patty Morris, 406-862-3977
P.O. Box 94
Helena, MT 59937
Additional Information: Please call Patty for more information.Joanne Friedenberg, 406-892-3179
232 Midway Drive
Colombia Falls, Mt 59912
North Valley Hospital
Canyon Room
Additional Information: This group meets on the 2nd Monday of each month. This group welcomes at risk, pre-symptomatic individuals, symptomatic individuals and family members. This group is run by the parent of an adopted adult child with HD.
Oregon
KAREN KOVAK, M.S.
PORTLAND, OR
503.494.5606 or kovakk@ohsu.edu
WHAT: General Huntington’s Disease Support Group
WHERE: OHSU South Waterfront
Center for Health and Healing
E Paul Kirk Conference Center, 3rd floor, Room 3180
3303 SW Bond Ave
Portland, OR 97239
WHEN: First Wednesday of the month at 6:30pm – 8:00pm
Maps and driving directions are available at http://www.ohsu.edu/xd/health/for-patients-visitors/getting-to-ohsu/driving.cfm and follow the link for directions to the South Waterfront.
For more information, or if you would like to be added to a mailing list to be notified about changes in the support group schedule, including special events, please contact:
Karen Kovak, M.S. Genetic Counselor 503-494-5606 or kovakk@ohsu.edu
RUSS KASTBERG
VANCOUVER, WA (Serving Portland area)
ph 360.430.5541 email rkastberg@cni.net
Northlake Baptist Church
5201 NE Minnehaha St. (63rd)
Huntington’s Disease Caregiver Support Group
Third Thursday of each month at 6:30pm
Washington
Rev. Jim Bridges
SEATTLE, WA
360.403.0909
University District
4131 11th AVE NE, Penthouse #1
Seattle, 98105
2nd Monday of each month, 6:30 – 8:00pm
DONNA ROSS
RENTON, WA
206.598.8753
Valley Medical Center
Medical Arts Center Building
Room MAC “C,” Northwest corner of campus
Ist Saturday of each month from 10am to noon
(for caregivers only)
DENISE BERGLUND
OLYMPIA, WA
360.426.7274
Providence St Peter Hospital
413 Lilly Road NE
1st Monday of each month from 5:30-7:00PM
LAVONNE GOODMAN
SNOHOMISH/EVERETT, WA
206.362.2907
or email: lavonne@hddrugworks.org
Everett Clinic Conference Center, Pilchuck Room
3830 Hoyt Avenue in Everett
4th Tuesday of each month at 6:30pm (for those at risk, premanifest, or with early disease)
CINDY CROSSMAN
MOUNT VERNON/BELLINGHAM, WA
425.327.6887
or email: cindycrossman@gmail.com
Skagit Valley Hospital
Mt. Baker Room
2nd Tuesday of each month at 6:30PM
Area Huntington Disease Support Contact People
***********Toll Free HELPLINE: 1-888-264-HDSA***************
Idaho
Peggy Webb, 208-683-2704
132 County Rd 22
Atoll, Idaho 83801
Carolyn Vogel, (W) 208-266-0266
Clarkfork, Idaho
Washington
Chris Wick, M.S.W.
Seattle HDSA
UW HDSA COE
(206) 743-2993
Brenda Vicars, R.N.
UW HDSA COE
(206) 598-8753
Area Ataxia Support Groups
Seattle Ataxia Support Group
Milly Lewendon, Group Leader
(425) 823-6239
mmlewendon@comcast.net
Area Charcot-Marie-Tooth Support Groups
Seattle Charcot-Marie-Tooth Support Group
UW Hospital Plaza Café
Ruth Oskoloff, Group Leader
(206) 598-6300
rosk@u.washington.edu